Prader-Willi Syndrome Clinic

Organization Name: Pediatric Medical Genetics, University of Utah Health Care
Address: 44 N Mario Capecchi Drive
Utah Department of Health Building
Salt Lake City, UT 84114
Phone: 801-712-0501
Service Categories:
Eligibility: Diagnosis of Prader-Willi Syndrome, under age 18, resident of Utah.
Wheelchair Accessible: Yes
Services Provided: Clinical care and management with services provided by pediatric/genetics, endocrinology, pulmonology/sleep specialist, psychiatry, nutrition, speech therapy, occupational therapy, physical therapy and Care Manager/Clinical Care Specialist.
Parent support group - Utah Prader-Willi Syndrome Association (http://www.upwsa.org/):
Lisa Thornton (Legal Issues - President, Utah PWSA, 801-582-0998)
Michelle Holbrook (Education Specialist - Utah PWSA, 801-376-3567).
Provider Profiles: Pediatric/Genetics - Dr. David Viskochil (University of Utah, Pediatrics/Division of Medical Genetics)
Endocrine - Dr. Scott Clements (University of Utah)
Pulmonology - Dr. Kathleen Pfeffer (Utah Sleep and Pulmonary Specialists)
Psychiatry - Dr. Philip Baese (University of Utah)
Nutrition - Krista Viau (University of Utah, Pediatrics/Medical Genetics Department)
Speech Therapy - Laura Barnett (Shriners Hospital)
Occupational Therapy - Chris Pratt (Kids on the Move)
Physical Therapy - Michael Workman (Professional Therapies)
Care Manager/Clinical Care Specialist - Debbie Mason, RN
Original Source: MedHome Portal
Last Updated: 11/22/2016